Perk Up Hemophila Half Marathon
Perk Up Hemophila Half Marathon: race description
The Perk Up Half Marathon is a chipped timed, challenging course combining rolling hills and beautiful scenery in the Upper Perkiomen Valley. Proceeds from the run benefit the Eastern Pennsylvania Chapter of the National Hemophilia Foundation.
What is hemophilia?
A genetic bleeding disorder that prevents the blood from clotting normally
There is no cure
Treatment involves injections of medication multiple times per week beginning from birth
Hemophilia treatment is among the most expensive in the world with a total annual cost per patient ranging from $60,000 to as much as $1,000,000 for some patients
Where does the money go?
Patient services, including MedicAlert bracelets and protective clothing for children, such as comfy caps to prevent brain bleeds
Camp opportunities for children
Educational programs and events
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